India’s First Chronic Kidney Disease Registry To Be Set Up In Odisha

Odisha is set to become the first state in India to implement a comprehensive chronic kidney disease (CKD) registry, with the initiative expected to roll out by March 31. The registry aims to provide reliable data on CKD prevalence and support evidence-based policymaking to address the rising burden of kidney diseases.

Currently, no Indian state maintains complete CKD coverage. While a national registry was previously initiated by the Nephrologists Association of India, it remains largely inactive with limited data. Odisha’s initiative seeks to fill this gap by establishing a structured, state-wide database to enable early detection, treatment planning, and long-term disease management.

A 12-member state task force, chaired by the Chief Secretary , will oversee the initiative, supported by a 17-member technical committee including experts from AIIMS, the Indian Council of Medical Research, state health institutions, and departments addressing drinking water, geology, and rural governance. The National Informatics Centre is developing dedicated software for the registry, with funds already allocated to ensure timely implementation.

The registry will capture CKD cases across all healthcare levels, from primary health centres to medical colleges. Existing data largely cover dialysis patients, representing only about 10% of total cases, while nearly 90% of patients remain in early stages. Around 60% of CKD cases in Odisha are associated with diabetes and hypertension, with the remaining 40% classified as CKD of unknown origin.

The state reported 19,888 CKD cases and 4,718 CKD-related deaths over the past three years. The new registry is expected to serve as a baseline for future research, epidemiological studies, and targeted public health interventions to reduce CKD-related morbidity and mortality.

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